Ogólnopolskie Stowarzyszenie Pomocy Osobom z Zespołem RettaAssociation

KRS: NIP:

Overview

Status
Active
Registry date
2002-01-10
Activity description

Ogólnopolskie Stowarzyszenie Pomocy Osobom z Zespołem Retta, together with the Rett Fighters Foundation, is organizing the conference “Rett Syndrome and Other Rare Diseases: Challenges in Therapy” in Poznań on 10–11 October 2026. The program covers gene therapy, pharmacotherapy, epilepsy, scoliosis, nutrition, AAC communication and physiotherapy, as well as practical workshops for parents and therapists.

Registered address
ul. 3 Maja 1-3, 62-500 Konin, Poland
Website
rettsyndrome.pl
Email
Phone
Social media
Electronic delivery address
AE:PL-71630-34662-VJERC-20

Offer

  • Support for people with Rett syndrome
  • Rehabilitation
  • Rehabilitation stays
  • Education
  • Training
  • Conferences
  • Social projects

Website technology

Website
  • WordPress
  • Elementor
Payments
  • Przelewy24

Public procurement

Ogólnopolskie Stowarzyszenie Pomocy Osobom z Zespołem Retta is the contractor in one public sector contract, worth USD 71.31.

SubjectAmount
Teacher professional development – Broadmaker training
$71.31

Authorized Representatives

Piotr Czachorowski – Sekretarz
Paweł Kwiecień – President
Marek Piegat – Vice President
Tomasz Pakulski – Skarbnik

Manner of representation

Declarations of will on behalf of the association, including declarations in property-related matters, are made by two members of the management board acting jointly, including the President.

Supervisory board

Monika Brak – Supervisory Board Member
Urszula Brzozowska – Supervisory Board Member
Krzysztof Skrzymowski – Supervisory Board Member

Beneficial owners

Person

Bank accounts

Registered as a VAT taxpayer on 2019-07-06.

Debt

No entries in the National Debtors Register (KRZ).

Public aid

No public aid cases recorded in the last 10 years.

FAQ

Last updated: 2026-06-11