Stowarzyszenie Dysplazje Szkieletowe SkeletonAssociation

KRS: NIP:

Overview

Status
Active
Registry date
2022-01-04
Activity description

Stowarzyszenie Dysplazje Szkieletowe Skeleton supports patients with achondroplasia in Poland, as well as families and healthcare professionals. The organization provides education on symptoms, everyday and social effects of the condition, and treatment, including vosoritide therapy under the B.166 drug program.

Registered address
ul. Jara 7D/2, 02-988 Warszawa, Poland
Website
odblokuj-zycie.pl
Opening hours
Monday–Friday
18:00–20:00
Email
Social media

Offer

  • Patient support
  • Information about achondroplasia
  • Educational materials
  • Family support

Website technology

Analytics and marketing
  • Google Analytics
  • Google Tag Manager

Public procurement

Stowarzyszenie Dysplazje Szkieletowe Skeleton is the contractor in one public sector contract, worth USD 540.25.

SubjectAmount
Implementation of a public task
$540.25

Authorized Representatives

Marta Magdalena Skierkowska – Prezeska Zarządu
Olga Prokopek – Wiceprezeska

Manner of representation

For submitting declarations of will in all matters, including property matters, of the association, concluding agreements and granting powers of attorney on behalf of the association, the President or female President, or two members of the management board acting jointly, is authorized.

Supervisory board

Anna Justyna Krztoń – Supervisory Board Member
Monika Kargol – Supervisory Board Member

Beneficial owners

Person

Debt

No entries in the National Debtors Register (KRZ).

Public aid

No public aid cases recorded in the last 10 years.

FAQ

Last updated: 2026-10-03