Stowarzyszenie Rodzin z Chorobą Fabry'egoAssociation
KRS: NIP:
Overview
Status
Active
Registry date
2002-08-22
Activity description
Stowarzyszenie Rodzin z Chorobą Fabry'ego brings together people living with Fabry disease and their families. It works to shorten access to treatment, support drug reimbursement, and raise awareness of this rare disease. It also runs public campaigns, takes part in medical conferences, and publishes a patient guide.
News
Offer
- Patient support
- Information about Fabry disease
- Integration of patients’ families
- Educational materials for patients
Website technology
- Website
- WordPress
- Analytics and marketing
- Google Analytics
Authorized Representatives
Anna Dominika Moskal – President of the Management Board
Dawid Ryszard Targaszewski – Vice President of the Management Board
Karolina Jankowska – Sekretarz
Michał Marcin Moskal – Skarbnik
Manner of representation
The President independently, or two other members of the management board authorized by the management board, are authorized to make declarations of will on behalf of the association.
Supervisory board
Adam Stanisław Dura – Supervisory Board Member
Anna Katarzyna Adamus – Supervisory Board Member
Maciej Marek Czyż – Supervisory Board Member
Beneficial owners
| Person | Rights |
|---|---|
Debt
No entries in the National Debtors Register (KRZ).
Public aid
No public aid cases recorded in the last 10 years.
FAQ
Last updated: 2026-04-29