Fundacja SmaFoundation
Overview
Fundacja SMA supports people with spinal muscular atrophy and their families, organizing community events such as the XIV Weekend ze SMAkiem in Warsaw. It also advocates for better access to treatment, including a request to the Health Minister to reimburse higher nusinersen doses, and shares information about SMA therapies and research.
News
Apitegromab: A New Drug for SMA in the United States
Polish Contribution to Changing the History of SMA: From Effective Treatment to a Good, Independent Life
Polish Contribution to SMA Knowledge Development – Briefing in the Parliament
SMA Women's Weekend
SMA Treatment and Swallowing Function – What We Know from Research Review
Authorized Representatives
Manner of representation
Each member of the management board is authorized independently to submit declarations of will on behalf of the Foundation and to represent it, whereas in transactions resulting in the Foundation incurring a financial obligation exceeding PLN 25,000, two members of the management board acting jointly are required.
Supervisory board
Beneficial owners
| Person | Rights |
|---|---|
Bank accounts
Registered as a VAT taxpayer on 2023-01-01.
56 2490 0005 0000 4600 1967 8972- 88 2490 0005 0000 4600 3537 8719
- 50 1300 0000 2823 6258 9000 0015
Debt
No entries in the National Debtors Register (KRZ).
Public aid
14 public aid cases recorded, with a total value of $5,136.
| Grant date | Purpose | Gross amount | Granting body | |
|---|---|---|---|---|
| Aug 3, 2023 | Aid in the form of wage subsidies for the recruitment of workers with disabilities | $428$428 | Prezes Zarządu Państwowego Funduszu Rehabilitacji Osób Niepełnosprawnych | |
| Jul 11, 2023 | Aid in the form of wage subsidies for the recruitment of workers with disabilities | $428$428 | Prezes Zarządu Państwowego Funduszu Rehabilitacji Osób Niepełnosprawnych | |
| Jun 7, 2023 | Aid in the form of wage subsidies for the recruitment of workers with disabilities | $428$428 | Prezes Zarządu Państwowego Funduszu Rehabilitacji Osób Niepełnosprawnych |
FAQ
Last updated: 2026-04-27